Living with a chronic illness is challenging to say the least.
Some days breeze by, while others drag, on as if tied to a lead weight.
Pain is tiring, and brings one down physically as well as emotionally.
We all have our crosses to bear, some are just a little heavier than others.
Here is my story:
At age 35, I gave birth to our 9th child. She was a beautiful healthy baby girl, weighing in at 10lbs. 15 oz. and was 23 3/4 ” long. All of my babies were big, as a result of my having gestational diabetes, but she was the biggest, and came after her due date. Seven of the nine came early and one arrived exactly “on time”. For the most part, although considered high risk, I had fairly easy pregnancies. Because of RH/ABO blood incompatibilities, pre-eclampsia with the first 2 or 3, and my having gestational diabetes, I was monitored very closely during my pregnancies, had additional testing, throughout, and worked with a nutritionist to help keep me from having to use insulin.
Unfortunately, after her birth (and my babies came FAST – several without doctors present – a few came so quickly, I never had time to get undressed and still had my shoes on), I had problems with hemorrhaging. I received blood transfusions, the day she was born, and again a week later, after we had come home from the hospital. The second time was a very close call.
I was not expected to live, but through the Grace of God, go I. The local paramedics just happened to be returning to the station, when they got our call, and were very nearby, so they arrived in record time. I was placed in a pressure suit, put on oxygen, and IV’s were started in my wrist and neck. In the emergency room, another IV was started, and I received plasma, along with other IV fluids. I don’t really recall being in any severe pain from my condition, as I was unconscious for most of the time, BUT, receiving the plasma was excruciating. It was frozen, so they had to hand pump it into me. It burned like fire, through my veins. They did try to thaw it somewhat, by running the lines through a tub of hot water, but it only succeeded in thawing it enough, to get it through the needle.
I had 2 emergency surgeries that night, and received a total of 19 units of whole blood and plasma. I was fortunate that they had the blood on hand, as I’m ONegative, which is always in demand. You see, ONegative blood is universal, which means that anyone can receive it, no matter what blood type – BUT – those of us who are ONegative can only receive ONegative blood. When you consider that only 7% of the US population has ONegative blood, it’s a miracle that they had enough to keep me alive.
I suffered brain damage – memory loss, some balance issues, and a
More to come…
I also have Reynauds Disease, Hypo-Thyroidism, Fibromyalgia and Chronic Fatigue Syndrome, along with a few other medical issues. I’ve had to have most of my thyroid removed, due to a benign tumor which grew around my esophagus, both my ovaries removed (again – benign tumors), both knees rebuilt (screws in both legs), and severe food allergies, requiring me to have Epi Pens with me at all time.
Due to my balance, and a problem with my periphery vision, I trip over everything (including dust bunnies – which in our house, we name and dress in little custom made outfits), and I tend to run into doorways on a regular basis. A couple of summers ago, I bashed my foot on a door jam, and broke the ball of my foot, along with 3 breaks in one of my toes…I also fell, and broke my tail bone.
More to come…
I’ve gained so much weight in the past 2 years, that I no longer recognize myself. This is an added strain on my emotional and physical health. Numerous continued medication changes, keep me going, and when all is said and done…things could so much worse. I have a loving and supportive husband, a Service Dog, that helps with physical and psychological (oops, I guess that I forgot to mention that I have agoraphobia – that’s another story for another day) issues. I have a fantastic medical team. I have Family ~ Friends ~ Hobbies ~ A Roof Over My Head ~ Clothes on my Back ~ Food to Eat. Life is Good.